Most days, I read the ALSTDI and PatientsLikeMe (PLM) ALS Forums and have done so for several years now. Why do I do this? I'll get to that later.
This morning, I came across a particular thread on PLM-ALS which rather struck me. Contained within it, are a few links including the one where I found, watched and read about Sarah's Story via the Motor Neurone Disease Association website.
After watching it a few times, I placed a link to the video at the Life Scientists room over at FriendFeed and left a comment at PLM to this effect.
Since you need to be a (free) registered member of PLM to access the Forum in question, I can't provide a link to the start of the thread. It reads:-
Hello All
I thought you might like to be aware that this afternoon the MND Association has just launched the first ever UK broadcast advert created to raise awareness of MND.
‘Sarah's Story' is our new awareness-raising campaign of the same name which we will roll out during 2009. The advert is currently being shown at over 50 independent cinemas across England and Wales.
Our hard-hitting advert features Sarah Ezekiel and after whom the campaign has been named, who of course is a regular contributor to patientslikeme. The film is intended to convey the emotional and physical impact of receiving a diagnosis of MND.
The 90-second film tells the story of a young woman who is suddenly ‘attacked' by MND. An actress plays the part of Sarah and as her body deteriorates, the actress's head is superimposed on the body of Sarah.
Its hard-hitting style is likely to shock some audiences. The aim is to stimulate viewers' curiosity to find out how they can help fight back against MND.
Our film has been created at virtually no cost to the MND Association, with extensive free support from within the advertising and film industries.
More information about the Sarah's Story campaign is at: www.sarahsstory.org.uk
More information about the campaign including details of when and where the advert will be screened can be found at:
www.mndassociation.org/sarahsstory
Very best wishes
Sarah
MND Association
Whilst I don't know Sarah Ezekiel per se, I am aware of her, have had contact with her, and am certainly aware of her background and tireless activity as a Patient Advocate in terms of ALS/MND.
(I've blogged about ALS/MND previously here and here).
As a Patient Advocate myself with a genuine interest and now involvement in research in fields of this nature, I was particularly moved by this short film and wanted to help in whatever capacity I could.
PLEASE WATCH THIS IF YOU CAN SPARE TWO MINUTES OF YOUR TIME
"The Making of Sarah's Story" also fully deserves a watch too.
"The MND Association, creatives, actresses and crew discuss the rationale behind the making of this powerful film. ..."
Watch The Making of Sarah's Story in Educational & How-To | View More Free Videos Online at Veoh.com
A big big thank you to everyone involved in this.
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